This is going to be a very down blog entry. I usually like to write something upbeat, but it’s my blog, and I can write what I want.

It seems to us many days that Avi is not getting any better. We have been through many different medications and therapies and so far nothing seems to work. We have been working with a state run agency for a while now called Youth Case Management, and finally, after 3 worthless case managers, we seem to have found someone who knows what they are doing and is not going to leave for a better job in a few weeks (one case manager was with us for around a month and told us after speaking with him once or twice, “oh yeah, I’m leaving next week.)

So Nicole, our case manager, came to meet with Marsha at home (the only one who did this) and got to see a full blown episode from Avi. She went with Marsha and Avi to UBHC (University Behavioral Health Center) but they wont admit Avi as he is not suicidal or homicidal (thank God). Then I spoke with her on the phone the next day and she would like to see a full Psychiatric eval of Avi (we have never really had a comprehensive one done) and a Neuro-Developmental eval as well. She is thinking that there are signs of Autism spectrum disorder in Avi and perhaps the entire diagnosis (ADHD)  is wrong. If this is the case, everything we have done for Avi over the past year has been a total mistake and we will have to start from scratch.

I guess I really hope that we did have it wrong. I don’t want to know that we wasted a year and that we have to start all over again, but if we have a better idea as to what is wrong with Avi, then we will have a better chance of helping him. So hopefully we will get these done over the next month or so and if we are lucky we will have better news then.

I guess I can end on a happy note. Noam won 2nd place in our Cub Scout pack pinewood derby (photo to come soon!)

1 Response to “Difficulties”

  1. 1 wrekehavoc February 19, 2009 at 6:42 am

    this must be so difficult for you and your family. i cannot imagine what it must be like. i hope you all stay strong. it sounds weird, but once they figure out what it is, you’ll be on the path to helping Avi. it is such a blessing when they finally figure out a diagnosis — trust me, i know 😉

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